Category: ME/CFS

Be Gentle with Yourself this Christmas

December 23, 2018 11:20 am

I just wanted to pop in to wish you all a peaceful Christmas. I know for many of us, this time of year can be difficult for a variety of reasons. Physically we have the additional pressure of trying to keep up with everyone else. We may feel disconnected and... View Article

Tips for the Festive Season when living with ME/CFS

December 1, 2018 6:00 pm

When you are living with an illness such as ME/CFS, Christmas can be a really difficult time. Seemingly simple things that others take for granted, such as sitting at the dinner table, may well be impossible for you right now. There will also, be a temptation to push yourself through... View Article

Exploring the Layers Beneath ME/CFS ~ Part Four

November 7, 2018 11:58 pm

What I decided to do Next, My Treatment Protocols and Where I am at Now… So much has gone on medically speaking during the last two years, there have been so many ups and downs and ‘the search’ has been complex and very ongoing. I have wanted to share so... View Article

Exploring the Layers Beneath ME/CFS – Part Three

November 7, 2018 8:00 am

Part Three – Further Consultations and Digging Deeper A number of weeks later, after having had the MRI scan, I was back at the hospital to see my Endocrinologist again. The MRI results showed that I had a number of small lesions in the white matter surrounding my brain which... View Article

Exploring the Layers Beneath ME/CFS – Part Two

November 6, 2018 10:00 am

Part Two –  The Tests and Consultations  In the coming months I had a variety of consultations and appointments. Some were helpful, some not so much, but all of them reinforced that there wasn’t going to be an easy answer or singular solution to what was happening in my body.... View Article

Exploring the Layers Beneath ME/CFS – Part One

November 5, 2018 10:00 am

Welcome to the Digging Deeper Series! My hope is that what I am about to share might inspire any of you who find yourself in a similar position to the one I have been in in recent years. If you are feeling stuck on the recovery path, overwhelmed by too... View Article

An Honest Post about Life’s little Setbacks

August 24, 2018 1:47 pm

I woke up this morning with that old familiar sensation of fear humming throughout my body. Aware of it before I’d even opened my eyes. It’s the first time this has happened in such a long time. Yesterday scared me. The level I had dropped to by the time the... View Article

The Dance Between Light and Dark ~ Summer 2018

July 14, 2018 10:30 am

I decided to sit down and write this week. As much as sometimes I resist opening up my laptop and letting the words flow, I knew it was time, its been far too long… I’ve done regular posts over on Instagram in recent months (you can find me here) but... View Article