Tag Archive: chronic illness

An Honest Post about Life’s little Setbacks

August 24, 2018 1:47 pm

I woke up this morning with that old familiar sensation of fear humming throughout my body. Aware of it before I’d even opened my eyes. It’s the first time this has happened in such a long time. Yesterday scared me. The level I had dropped to by the time the... View Article

Moving through Difficult Days

February 15, 2018 1:14 pm

I want to talk to you about the times where fear and overwhelm creep in. The place inside your mind that may include the sentence ‘What if life is always this way?’ It seems to come when you’ve had one too many bad weeks after another. Maybe it dawns on... View Article

Do You Embrace or Resist Rest?

January 18, 2018 5:59 pm

It continues to surprise me, how so many of us fiercely resist rest. In society today, it’s as if  ‘being busy’ is seen as good and ‘doing nothing’ is bad. I’m not sure where this belief came from, but its definitely there. Personally, even though I live with chronic illness... View Article

Words on Life with an Invisible Illness

June 30, 2017 4:03 pm

The feeling of separation that comes, from not being able to be out in the world in the way you would love to. Your heart yearning to be able to live freely, without the crushing exhaustion or the payback that comes from taking that one step too far. The uncertainty... View Article

Seven Year Cycles

February 13, 2017 5:49 pm

Today is seven years exactly, to the day, that I relapsed and became sick again after believing I had made a full recovery from ME/CFS.  17 years in total I’ve been on this journey with chronic illness. It feels surreal even acknowledging that. 13th Feb 2010, was the day it... View Article