When living with a chronic health condition such as ME/CFS, many of us put a subtle yet significant pressure upon ourselves. To be positive. To stay strong. To dust ourselves down easily after every setback. To hold it together. Smile. Believe wholeheartedly in our healing every single day. To do... View Article
It’s been a month since I last checked in here and around five weeks since the Coronavirus lockdown began in the UK. I know for many of us, emotions are up and down, with some days being better than others. I’m sure that, like me, you’ll be seeing the parallels... View Article
We are 19 years on now from the year I was diagnosed with ME/CFS. The year a GP said to me in the most dismissive of voices ‘you need an exercise bike’ during an appointment that I’d been carried into by my step father as I couldn’t walk or hold... View Article
I woke up this morning with that old familiar sensation of fear humming throughout my body. Aware of it before I’d even opened my eyes. It’s the first time this has happened in such a long time. Yesterday scared me. The level I had dropped to by the time the... View Article
I decided to sit down and write this week. As much as sometimes I resist opening up my laptop and letting the words flow, I knew it was time, its been far too long… I’ve done regular posts over on Instagram in recent months (you can find me here) but... View Article
I want to talk to you about the times where fear and overwhelm creep in. The place inside your mind that may include the sentence ‘What if life is always this way?’ It seems to come when you’ve had one too many bad weeks after another. Maybe it dawns on... View Article
The feeling of separation that comes, from not being able to be out in the world in the way you would love to. Your heart yearning to be able to live freely, without the crushing exhaustion or the payback that comes from taking that one step too far. The uncertainty... View Article
As a society, we like things that are perfectly packaged – even healing/recovery stories or various stories of real life trials and tribulations. When you read these stories, you’ll often find that they (or us as a reader!) skip through the painful parts fairly swiftly, focusing on the neatly packaged... View Article