Tag Archive: ME/CFS

The Medical Ignorance that Surrounds ME/CFS

July 8, 2019 1:45 pm

We are 19 years on now from the year I was diagnosed with ME/CFS. The year a GP said to me in the most dismissive of voices ‘you need an exercise bike’ during an appointment that I’d been carried into by my step father as I couldn’t walk or hold... View Article

The Story of my New Mirror

April 26, 2019 9:51 am

This is me and my new Mirror. This Mirror is a big deal for me, a poignant moment in my healing, and I’ll share why. For a long time, I had what I guess you could call a phobia of mirrors? Since 2010 I’ve only had very small ones in... View Article

Be Gentle with Yourself this Christmas

December 23, 2018 11:20 am

I know for many of us, this time of year can be difficult for a variety of reasons. Physically we have the additional pressure of trying to keep up with everyone else. We may feel disconnected and left out if we aren’t well enough to join in with things. I... View Article

Tips for the Festive Season when living with ME/CFS

December 1, 2018 6:00 pm

When you are living with an illness such as ME/CFS, Christmas can be a really difficult time. Seemingly simple things that others take for granted, such as sitting at the dinner table, may well be impossible for you right now. There will also, be a temptation to push yourself through... View Article

Exploring the Layers Beneath ME/CFS ~ Part Four

November 7, 2018 11:58 pm

What I decided to do Next, My Treatment Protocols and Where I am at Now… So much has gone on medically speaking during the last two years, there have been so many ups and downs and ‘the search’ has been complex and very ongoing. I have wanted to share so... View Article

Exploring the Layers Beneath ME/CFS – Part Three

November 7, 2018 8:00 am

Part Three – Further Consultations and Digging Deeper A number of weeks later, after having had the MRI scan, I was back at the hospital to see my Endocrinologist again. The MRI results showed that I had a number of small lesions in the white matter surrounding my brain which... View Article

Exploring the Layers Beneath ME/CFS – Part Two

November 6, 2018 10:00 am

Part Two –  The Tests and Consultations  In the coming months I had a variety of consultations and appointments. Some were helpful, some not so much, but all of them reinforced that there wasn’t going to be an easy answer or singular solution to what was happening in my body.... View Article

An Honest Post about Life’s little Setbacks

August 24, 2018 1:47 pm

I woke up this morning with that old familiar sensation of fear humming throughout my body. Aware of it before I’d even opened my eyes. It’s the first time this has happened in such a long time. Yesterday scared me. The level I had dropped to by the time the... View Article