Tag Archive: ME/CFS

The Month the World Changed

March 27, 2020 6:13 pm

So much has happened since I last checked in here. Beyond what I am guessing most of us could ever comprehend. This time of the Covid-19 outbreak is affecting everyone worldwide, each of us in different ways. Please know that I’m sending my love to you, where ever you are... View Article

A Story of Hope

January 5, 2020 11:13 am

This is a story of hope. In these words I’m going to share with you something beautiful that happened this week, along with reflections on a time of my life that challenged me in ways I couldn’t have imagined possible. I hope the essence of this story touches your heart and... View Article

Tips to help you Embrace the Festive Season

November 29, 2019 6:00 pm

When you are living with an illness such as ME/CFS, Christmas can be a really difficult time. Seemingly simple things that others take for granted, such as sitting at the dinner table, may well be impossible for you right now. There will also, be a temptation to push yourself through... View Article

The Medical Ignorance that Surrounds ME/CFS

July 8, 2019 1:45 pm

We are 19 years on now from the year I was diagnosed with ME/CFS. The year a GP said to me in the most dismissive of voices ‘you need an exercise bike’ during an appointment that I’d been carried into by my step father as I couldn’t walk or hold... View Article

The Story of my New Mirror

April 26, 2019 9:51 am

This is me and my new Mirror. This Mirror is a big deal for me, a poignant moment in my healing, and I’ll share why. For a long time, I had what I guess you could call a phobia of mirrors? Since 2010 I’ve only had very small ones in... View Article

Be Gentle with Yourself this Christmas

December 23, 2018 11:20 am

I know for many of us, this time of year can be difficult for a variety of reasons. Physically we have the additional pressure of trying to keep up with everyone else. We may feel disconnected and left out if we aren’t well enough to join in with things. I... View Article

Exploring the Layers Beneath ME/CFS ~ Part Four

November 7, 2018 11:58 pm

What I decided to do Next, My Treatment Protocols and Where I am at Now… So much has gone on medically speaking during the last two years, there have been so many ups and downs and ‘the search’ has been complex and very ongoing. I have wanted to share so... View Article

Exploring the Layers Beneath ME/CFS – Part Three

November 7, 2018 8:00 am

Part Three – Further Consultations and Digging Deeper A number of weeks later, after having had the MRI scan, I was back at the hospital to see my Endocrinologist again. The MRI results showed that I had a number of small lesions in the white matter surrounding my brain which... View Article